Rhode Island Breast Cancer Coalition is the State's only Breast Cancer ADVOCACY Organization
 
       

The National Breast Cancer Coalition’s
2016 Legislative and Public Policy Priorities

The goal of Breast Cancer Deadline 2020®, to know how to end breast cancer by January 1, 2020, is being achieved through a plan of action centered on four key strategic areas: targeted research, public policy, grassroots advocacy and communications. What does ending breast cancer mean? By January 1, 2020, we must understand how to prevent people from getting breast cancer in the first place and how to prevent them from dying from the disease. 

As you know, each year in preparation for the determination of NBCC priorities by our Board of Directors, we ask our grassroots network to identify issues that meet NBCC criteria and that they believe the Board should consider in their deliberations.  This year, we received requests that we support as a priority various pieces of legislation such as bills that relate to medical marijuana, cancer care plans in Medicare and others. We received requests to focus on triple negative breast cancer, on metastatic breast cancer and differentiating which tumors will spread, among other issues. We also receive requests to focus on 3D mammography, personalized medicine and clinical trials, in addition to other issues. These are a representative sample of the requests the Board received; they provide an overview of the types of issues brought to NBCC.  After presentation of each suggestion and discussion, the Board decided that the priorities should remain the same.  We are also reviewing all that is happening around the Biden initiative and various "cure" bills on Capitol Hill, to determine if there are other areas we should analyze and consider.

The 2016 Legislative and Public Policy Priorities outlined below further the public policy strategy of our overall plan.  They serve as the foundation of our legislative advocacy work throughout the year, and along with grassroots mobilization efforts, provide the context for the action alerts sent to our network. 


Please review NBCC’s 2016 Legislative and Public Policy Priorities.  Distribute them to your networks and keep them on hand to use in your NBCC legislative advocacy work. 

As we develop specific strategies to forward our priorities, your prompt attention and action on alerts will be critical to our success. 

PRIORITY #1   Accelerating the End of Breast Cancer Act: In 2010, the National Breast Cancer Coalition (NBCC) set a deadline to know how to end breast cancer and launched a plan to achieve it.  Breast Cancer Deadline 2020® is a call to action for all stakeholders to concentrate their efforts on knowing how to end the disease by the end of the decade. The Accelerating the End of Breast Cancer Act (S. 746 /H.R. 1197), defines an important role the federal government must play in this effort. The legislation complements and enhances the strategic work being done by NBCC to end breast cancer once and for all.

PRIORITY #2   $150 Million for the Department of Defense (DOD) Breast Cancer Research Program (BCRP) for FY2017: As a result of NBCC’s grassroots advocacy, the DOD BCRP was created in 1992 to “eradicate breast cancer by funding innovative, high-impact research through a partnership of scientists and consumers.” The DOD BCRP is widely viewed as an innovative, unique, and efficient medical research model which has proven to be accountable to the public and has produced extraordinary results. NBCC seeks continued funding for this successful program. 

PRIORITY #3   Guaranteed Access to Quality Care for All: Ensuring access to quality, evidence-based health care has been a top priority of NBCC for many years and is an essential component of Breast Cancer Deadline 2020®. NBCC works to identify, advocate for, and support the implementation of laws such as the “Affordable Care Act” which mark important steps forward in access to quality health care for individuals with, and at risk of, breast cancer. In addition, NBCC remains committed to protecting vital existing programs, such as the Medicaid Breast and Cervical Cancer Treatment Program.

PRIORITY #4   Ensuring the Participation of Educated Patient Advocates in all Levels of Health Care Decision Making: NBCC continues to work to ensure that educated patient advocates have a “seat at the table” in all levels of health care decision making which affects their lives. 

 

 


Dear Friends,

Welcome to the Rhode Island Breast Cancer Coalition's home on the web. The information posted here has been gathered to help you become better informed about the messages heard from the many diversified voices in the world of breast cancer. We also hope that we can encourage you to become an active participant in the movement for breast cancer advocacy.

The RI Breast Cancer Coalition advocates are committed to supporting and promoting the Breast Cancer Deadline 2020 Campaign initiated by the National Breast Cancer Coalition.  We believe this Deadline can be met and we are fully engaged in its efforts to identify a vaccine to prevent breast cancer and research to identify why and how the disease spreads to other organs causing metastatic disease which women ultimately causes a woman’s death.

Integral to the success of Breast Cancer Deadline 2020 is a change in the conversation about breast cancer. Media, advocates, survivors, researchers, policy makers and others must be educated in order to shift the essential public dialogue about breast cancer from awareness and mammography to prevention and saving lives.

Leaders in government, industry and all areas are being urged to embrace the Deadline with courage and conviction and make ending breast cancer a priority.  Members of the RI Breast Cancer Coalition are interacting with our Congressional  Delegation in Washington DC to push for appropriate policies and discussions about breast cancer. Strategies include a petition drive, the design of legislation that compliments the campaign and advocacy efforts that secure declarations of support from policy leaders.

The Accelerating the End of Breast Cancer Act has been introduced in the US Senate by Sen.  Sheldon Whitehouse and in the House of Representatives as well.

One of the primary objectives of Breast Cancer Deadline 10120 is to facilitate collaboration in all areas of research and minimize unnecessary competition.  NBCC is leading an effort to encourage all stakeholders involved in research, particularly the scientific community, to work together to create synergy and develop partnerships to advance the pace if research.  

Breast Cancer Deadline 2020 has one goal: By January 1, 2020, we must understand how to prevent people from getting breast cancer in the first place and how to prevent them from dying from the disease.  Breast cancer advocates are engaged throughout the process to make certain that location, economic status, and societal factors are not barriers to access. NBCC provides survivors and other advocates the education, tools, training and actions that enable us to take leadership roles in clinical, scientific, policy and legislative decision making that affects breast cancer research and public policy.

We invite YOU to become a trained breast cancer advocate and participate in ending this disease for the next generation.  Ribbons, races and walks will never end breast cancer.  WANTED: Assertive, committed, individuals not satisfied with the status quo and willing to push the envelope and demand actions to end breast cancer by the end of the decade.    

Thank you,
    Rhode Island Breast Cancer Coalition
                    and
    National Breast Cancer Coalition

 


Click Here to Read the Latest Newsletter
Call to Action - February, 2015


 

 


2015 Legislative and Public Policy Priorities

 

 

 
SERVPRO of Providence Donates to
Rhode Island Breast Cancer Coalition

 
     
     
 

Join Us for the 2016 Advocate Leadership Summit

April 30-May 3, 2016
Click here for more details

     
     
 

Weight loss program for women who have had breast cancer

Location: The Miriam Hospital
Time: This program will have eight 45 minute meetings over a 12 week period.
When: groups start every couple of months.
Cost: $120.00.
Contact: Mary M. Flynn, PhD, RD, LDN
401.793.4707
Mary_Flynn@brown.edu

Click here for more details
 
     

Breakthrough Designation

Breast Cancer Drug Receives Breakthrough Designation from
FDA - read more.

     
  

BreastCancerDeadline2020.org

The National Breast Cancer Coalition is putting a deadline on awareness. Join the action to end breast cancer by 2020. Click here to view a video.

  
 
  


Affordable Health Care Act

Read about the impact on Rhode Island. Click here.

 

  
 
  


At the heart of it I would give you
The threads of all that made this cloth….
The blaze of the sugar maples in late afternoon, fallen leaves, paling, turning brown,crackling around our ankles as we scuffed long.

The smell of fires in the Saturday dusk,
Our fathers in plaid woolen shirts lean on
their rakes…contemplating their kingdoms with satisfied eyes.
Behind steamy kitchen windows
our mothers, benevolent in homemade shirtwaists and aprons stand watch.

Come home when the lamps come on.

We learned to watch for the softening of
the day,
The easing into dark.
Just at the hour when edges fade,
the streetlamps would send us home.

An original poem by Joy Veaudry, RIBCC member and trained breast cancer advocate. Joy died after a long struggle with her diagnosis and metastatic disease. She had 2 books of poetry published. This reading is from her book "A Clear Path Home".

 

  
 
 
   

 

 

 

     
 
 
  


A Challenge for You:
Changing the Conversation

Click Here to Learn More

  
 
 
 
 
     

 

           
 
Rhode Island Breast Cancer Coalition (RIBCC)
PO Box 578 Coventry, RI 02816   |   Toll-free 800-216-1040